Confident championing: A grounded theory of parental adjustment following a child’s diagnosis of developmental disability. 

When a child with a disability arrives in a family the messages of condolence are often greater than those of congratulation.

The history of parenting a child with special needs or a disability is littered with bereavement, ‘loss’  and sadness concepts, putting negative connotations  around the parenting process.

Parents are often labelled ‘warrior parents’,  as they fight for the rights to services and provision for their child.

This newly published article describes collaborative research with  Dr Anne Connor and Dr Barry Coughlan of the Clinical Psychology programme, at the Univeristy of Limerick in Ireland .

Through this research we have evolved and tested the concept of’ “Confident Championing “ to frame the positive endeavors of parents of children with developmental disabilities, and to bring a different lens to viewing their efforts on behalf of their child and family.

Please click here, or the icon below to open and view,
Confident championing - article

Information sheets to support Teachers and Teaching Assistants

Information sheets to support Teachers and Teaching Assistants 

These are the first in a series of information sheets which are being produced by the National Forum for Neuroscience and Special Education  ​

The five topics covered so far are:

  1. What teachers need to know about acquired brain injury (ABI) and traumatic brain injury (TBI)
  2. What teachers need to know about developmental language disorder (DLD)
  3. What teachers need to know about foetal alcohol spectrum disorder (FASD)
  4. What teachers need to know about prematurity
  5. What te​achers need to know about trauma and post-traumatic stress disorder (PTSD)​

Click this link to view the sheets : –

https://www.naht.org.uk/about-us/our-councils-committees-and-forums/national-forum-for-neuroscience-and-special-education/

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National forum for neuroscience and special education

“Education is concerned with enhancing learning, and neuroscience is concerned with understanding the mechanisms of learning. It seems only logical that one should inform the other.” Professor, Dame Uta Frith, Patron of the National Forum for Neuroscience and Special Education.

This group brings together scientists, teachers and social care professionals to share knowledge, best practice and expertise on special education in the context of neuroscience.

The forum aims to do the following:

  • Encourage discourse around the changing pattern of childhood disability
  • Share insights from both fields that lead to innovative practice and better learning outcomes for children
  • Campaign on issues of interest to the forum (for example, better training for teachers, more support for students with mental health issues and greater flexibility in the school system over ages and class groups).

The group works closely with the autism and girls forum and reports to our SEND sector council. And it is an independent group that we currently serve.

History

The group was founded in 2011 by Professor Barry Carpenter CBE, Professor Francesca Happé and Dr Rona Tutt OBE (a past president of NAHT). It emerged from discussions about how to facilitate closer working between neuroscientists and those working with children who have special educational needs and/or disabilities (SEND).

 

Anxiety: A guide for parents (from Cerebra)

Each month we highlighting one of our information resources. This month it’s the turn of our Anxiety guide. It can be difficult to spot signs of anxiety in others, especially in children with brain conditions, who can’t always express what they’re feeling. Our anxiety guide gives advice on spotting the common signs and gives some strategies for helping your child reduce their anxiety.

Click the cover image below, or here to download this free resource from Cereba

 

 

 

Grief in Children – using ‘The Bereavement Box’ (Updated)

In this recording, Professor Carpenter discusses the issue of grief, loss and mourning in children during this pandemic period.

The Bereavement Box resource can obtained from the following website link: nurtureuk