Interdisciplinary Perspectives on Premature Birth

On Friday 14 July 2017, an interdisciplinary conference was held at Birmingham City University to raise awareness and highlight current research on this topic.

The slides are now available http://www.bcu.ac.uk/research/stories/born-early

Also the keynote given by Dr Susan Foster-Cohen from the Champion Centre in New Zealand can be watched below:

 

 

Autism in Girls: Call To Action updated and relaunched

At nasen live in Birmingham in July , Professor Barry Carpenter , Chair of the National Working Group on Autism in Girls, ( supported by the NAHT) relaunched the Call to Action, as part of his keynote address. This can be downloaded free below.
 
It has also been announced that a new book ‘ Understanding Autism in Girls (Routledge) will be published late 2018 . The book will feature chapter contributions by members of the National Working Group , and will be edited by Professor Carpenter with Professor Francesca Happe, and Jo Egerton.
GIRLS ON THE AUTISM SPECTRUM: THE BIG SHOUT!

Book Clubs for people with Learning Disabilities

Using the ‘wordless’ Books Beyond Words, (BBW), has given a new lease of life to Katie Carpenter, (a young woman with Down’s syndrome) who runs her own Book Club every month for her friends , and now works as a volunteer Book Club Leader in a new 19-25 educational provision for young adults with Learning Disabilities.

Here her Father, Barry Carpenter, describes the impact on Katie’s life, in terms of her daily functioning, friendships and releasing her leadership capacity.

https://www.dropbox.com/s/v3dxabn54fcjzkn/P1000412.MP4?dl=0

Katie Carpenter Photo Book Signing
Katie signing copies of her co authored book in the BBW series , “Going to Church .”

 

 

 

 

 

 

 

 

More information about the Books Beyond Words series can be obtained from www.booksbeyondwords.co.uk

Neuroscience & Teachers

Increasingly teachers are wanting to increase their understanding of brain functioning in children , and how it enhances our understanding of the learning process.

There is an excellent listing of online resources about neuroscience and the brain on the BNA website:

https://www.bna.org.uk/about-neuroscience/online-resources/

 

Inquiring Minds: Adapting mental wealth journals for pupils with additional needs

This beautifully crafted article by Jo Egerton and Bev Cockbill describes a school based inquiry, generating an evidence base, from which professional judgements can be made about the effectiveness of emotional well being journals as a resource for promoting positive mental health is children with SEND.

It is timely as it addresses practical approaches to Mental Heath in schools, but also demonstrates the power of classroom-based inquiry as a key approach to professional learning for teachers and teaching assistants.

Link Below:

https://www.butterflyprint.co.uk/inquiring-minds/

 

The ‘Parents of Girls with Autism’ online community

The ‘Parents of Girls with Autism’ online community has now been approved and can be found here http://network.autism.org.uk/group/parents-girls-autism

The community is aimed at parents, however it also welcomes women with autism and professionals with an interest in the subject.

Please register through the weblink above to join.

Developing housing for young people with learning disabilities

This blog describes an initiative in the West Midlands led by MyLife.http://www.mylife.uk.com/

This guest blog comes from Professor Barry Carpenter CBE, chair of MyLife, a support service in Hartlepool and Moseley in Surrey enabling people with complex needs to live as independently as possible in the community.  Here, he describes MyLife’s new initiative in the West Midlands to support young people leaving education and preparing to live independently.

We all develop the desire to live independently and take control of our adult lives as we approach school-leaving age, and young people with special educational needs are no different.

But transitioning into employment and independent living is obviously more challenging for this group.  As a former headteacher, I’ve seen so many young people not do well because of a lack of support as they enter adulthood; they haven’t been able to secure a job, they remain dependent on their parents and lose confidence in their abilities.

MyLife is currently working in partnership with a school in the West Midlands to explore ways we can help young people with special needs better prepare for leaving education.

My daughter, Katie, has been the inspiration for this next stage of MyLife’s development.  She has Down’s Syndrome and she has shared a home with friends for eight years.  Now aged 30, she’s just about to start her first paid role with a school, running a ‘without words’ book club for children who find learning easier through images rather than text.

Katie has experienced numerous knock-backs but I believe the fact that she is independent and able to manage her own life has given her the self-esteem to withstand these setbacks and maintain her confidence.

And building this independence is what we are focusing on in the West Midlands.

A tenet of the revised Code of Practice for SEND is to offer young people support past the age of 19 and up to 25.  MyLife is working with Westminster School in Rowley Regis to develop their curriculum for this age group.

A key theme is ‘My Home’, and students will have access to a training flat where they can learn life-skills such as cooking, cleaning, registering with a doctor and taking public transport.

Alongside this we are looking at ways we can support the young people to live independently. This will involve sourcing a range of accommodation to meet their range of needs, be it a shared house, a flat of their own or supported living.  We shouldn’t just think that this model can only be available to people with low support needs; living as independently as possible should be available to people with the most complex needs as well.

It’s an exciting development of our services and one that we want to see expand.

The National Audit Office estimates that equipping a young person with the skills to live in even semi-independent housing could reduce support costs to the public purse by around £1 million.  It also suggests that supporting one person with a learning disability into employment could increase that person’s income by between 55 and 95 per cent.

But what is most important, both for young people and our communities, is that these skills give young people with additional needs, people like Katie, the chance to create a home for themselves where they can make their own choices, have friends to visit and have somewhere to recharge and truly relax.

 

Professor Barry Carpenter is Chair of the Advisory Board for Mylife.  A former headteacher of three special schools and a school inspector, he is currently Chair of the Autism and Girls Forum and the Complex Needs Training Review Group for the National Association of Special Educational Needs.

His innovative research project on children with complex learning disabilities in the UK is now being replicated in two major European projects and translated into major European languages.

He is a member of Health Education England Learning Disabilities Expert Reference Group for the Department of Health, and lead consultant for the South Australian Department of Education and Children’s Services.  He is also a director of Books Beyond Words.

To find out more about MyLife services go to http://www.mylife.uk.com/

 

Acquired Brain Injury

Acquired Brain Injury or ABI, is often a misunderstood source of special needs/ disability in Children.
Post brain trauma children can often be left with dyslexia, ADHD or learning disabilities.
The Child Brain Injury Trust offers a range of factsheets, workshops and webinars to support schools and teachers.
These can be found on www.childbraininjurytrust.org.uk